#SpoonieSeren: Living With A Stick

­čąä Welcome to the #SpoonieSeren Series! ­čąä Being diagnosed with Vasculitis at the age of 20 in November 2017, I've been thrown into the deep end of an invisible, chronic disability. This series is going to explore my experience with disability - what vasculitis is, what it means, how I suffer from it, etc! I'll … Continue reading #SpoonieSeren: Living With A Stick

A Personal Update

Finishing off the third year of my degree whilst working full-time has been somewhat of an undertaking - amazing, fun and empowering, but an undertaking all the same. Maintaining a social life and a healthcare regiment alongside this has meant throwing blog-writing into a box and chucking it into the loft to gather some cobwebs. … Continue reading A Personal Update

Rare Disease Day 2018: Rare and Real

According to Rare Disease Day, 'a┬ádisease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000.'┬áSearching for my disease on Orphanet, it turns out that I'm between 1/70,000 and 1/100,000. I have scored the EGPA jackpot, that's for sure! https://www.youtube.com/watch?list=PLw82lJoP71WhRRUPnNeap9eYHB7qROv1A&v=CLs5Q1XUiUg Rare Disease Day addresses the common problems faced; "The … Continue reading Rare Disease Day 2018: Rare and Real